★ Personalised management — not just information

What's your ichthyosis type?

Find your type. Get your plan. Manage your ichthyosis with confidence — step by step.

Why Ichthyosis Guide

Your coach, not just a website

Instead of "Here's what ichthyosis is" — here's how to deal with your ichthyosis, today.

Find your type in 2 clicks

Our Type Finder quiz asks 6 questions and points you to the right hub — no jargon needed.

Take the quiz →

Your daily routine in 5 minutes

Type-specific morning and evening protocols with exact products, timings, and step-by-step instructions.

Build my routine →

Medication options for YOUR type

Efficacy %, side effects, NHS cost and timeline — compared side by side for your type.

Explore medications →

Solve your problem in 3 clicks

Itching? Cracked heels? Scaling at work? Search your problem and get a type-specific solution.

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Connect with people like you

Tips crowdsourced from real patients with your type. Community hacks that actually work.

See community tips →

8-week structured protocol

A week-by-week plan — exactly what to do and what to expect at each stage.

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How it works

From confused to confident in 4 steps

Most people spend years piecing together information. This site gives you a clear path from day one.

1

Identify your type

Take the 6-question quiz or browse all 11 types

2

Get your daily routine

Morning and evening protocol for your type, severity and budget

3

Understand your medications

Compare treatments with real efficacy data and NHS costs

4

Solve your problems

Search any issue and get a type-specific solution with timeline

Trusted by patients & families

You're not managing this alone

Thousands of people with ichthyosis use these guides every day to take control of their condition.

10,000+
people managing their ichthyosis
11
type-specific management hubs
63+
evidence-based guides
25+
peer-reviewed citations

Common questions

Quick answers

The questions we get asked most often — answered clearly and practically.

What exactly is ichthyosis?

Ichthyosis is a group of genetic skin conditions where the skin's normal shedding process doesn't work properly, causing it to build up in scales or thickened patches. It ranges from very mild (Vulgaris, affecting 1 in 250 people) to very severe (Harlequin, 1 in 500,000). It's not contagious.

How do I know which type I have?

The most reliable way is genetic testing via your GP or dermatologist. Our Type Finder quiz asks about symptoms, onset and family history to suggest the most likely type — always confirm with a specialist.

Is there a cure?

There is currently no cure for inherited ichthyosis. Symptoms can be very effectively managed with daily skincare routines, emollients, and prescription medications. Gene therapy research (trial NCT04047732) is showing promise — see our Gene Therapy Hub.

What's the most important thing I can do today?

Start a consistent emollient routine. Applied twice daily — especially within 3 minutes of bathing — emollients reduce scaling, itching and cracking by 70–85% in most types. It's the single most impactful thing you can do.

Should I see a specialist?

For mild Vulgaris, a well-informed GP may be sufficient. For all other types — especially Lamellar, Harlequin, Netherton — a specialist dermatologist is strongly recommended. Use our Specialist Finder.

See all 25+ questions →

Ready to take control?

Start by identifying your type — it takes 2 minutes and unlocks your personalised management plan.

Find my type now →